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    • A Teacher Tale: The English Teacher Who Hates to Read Aloud

      Posted at 12:31 pm by Jeddarae, on January 23, 2021

      If I were to open my MyChart app for you, you’d see a scary list of my illnesses:  ulcerative colitis, fibromyalgia, Ménière’s, and IBS–to name a few. And while they sucketh harder than all marathons ever run collectively, most of my chronic issues are hidden beneath my cracked wide-open and bleeding (thanks visible psoriasis), painful to the touch most days (thanks invisible fibromyalgia), and purple-then-blue-then-white-then-red (thanks visible Raynaud’s) epidermis. 

      But if you were to open my classroom door and stay for a while, you’d see another of my afflictions (and I’m not talking about my very visible llama problem). While it doesn’t cause me any physical pain, the emotional distress it inflicts upon me makes me feel embarrassed and like a failure.

      You’d expect this funny, vibrant, spunky, whimsical (if I do say so myself) English teacher to be downright eloquent, a blonde version of John Keating in Dead Poet’s Society, but, y’all–I. Hate. To. Read. Aloud. In. Class. Because. I. Fuck. It. Up—-so hard. 

      Why?

      1. I read ALL the time but–to myself. And while my dad read the funnies out loud to me as a child, I don’t remember other adults consistently reading texts aloud to me. I might be misremembering, because my brain is fickle, but I’m fairly certain that by middle school, we did most of our reading for English class by ourselves. What does this boil down to? I haven’t heard a shit-ton of words that I would recognize in print ever pronounced. So throughout the years, I made up my own pronunciations. Yeah, I used to sit with a dictionary to look up a word’s meaning, but I never bothered with the pronunciation. It’s a whole hell of a lot easier now to stop and have Google’s online dictionary pronounce schadenfreude for you than it was in the 90s because a hardcover Webster’s Dictionary lacked that feature. I’ve blundered through words like caste, propitious, and scythe because I’d never heard them spoken only to have students correct me. That shit’s embarrassing. And it happens all the time. Once I even had a parent call to complain that I didn’t pronounce yeoman correctly while teaching The Canterbury Tales for the first time. Sorry that I’m not fluent in Middle English? How often is that word used in casual conversation? Also, get over yourself. I can’t ever get ahead of myself either because the curriculum is always changing. Next year? I get a brand-new curriculum (woohoo?), meaning new literature and an unexplored minefield of words I’ve never heard spoken.
      2. Y’all. The amount of Greek, Hebrew, Latin, French, and Spanish that is embedded in the texts that we read throws me for a loop as well. This Midwesterner who relocated to the deep Cajun French South only knows how to say bonjour in French. I can read some Greek, from studying abroad, and am even better at reading Russian (thanks college), but pronouncing Greek and Russian words? Nope. I bombed every Russian oral exam. Last year I taught The Odyssey, and I told the students, hey, I’ve never taught this before, there’s a lot of Greek, let’s work through this together. And it took us several rounds to remember how to say Telemachus, Antinous, Aeaea, etc., correctly. We just finished Elie Wiesel’s Nobel Peace Prize Lecture “Hope, Despair, and Memory” last week, and I know I mispronounced every single thing in Hebrew and several allusions–despite looking up how to say them beforehand. It takes time to commit how to say previously unknown words to memory. 
      3. There are just some words I can’t say. Like magnanimity. Despite listening to how to say this word on repeat, I can’t say it. I go all Nemo trying to say anemone and start thinking about magma and then the Magna Carta, and now I’ve exposed you to the rabbit hole that is my brain. Sorry!!!!
      4. Fibromyalgia. Most of the time, my fibro is invisible, but I struggle with cognitive function and brain fog if I’m in a flare, making my fibro finally visible. It’s worse in the morning and at night. What’s it like? Not being able to pronounce words that you know how to say. Slurring your words when you’re reading or talking when you are dead sober. The inability to find the word you want to use, even when it’s staring you dead in the face. Transposing letters in words. Saying one word when you meant to use a different one. Not being able to form a sentence period in the morning when you’re supposed to get students excited about literature and the kids look at you like you’re stupid when language fails you. And now that I’ve written this, I wonder just how much my fibro prevents me from mastering numbers 2-3.

      So how does this English teacher who hates to read aloud because she can’t spoken-word well cope? She relies heavily on audio versions of texts, and when she can’t find audio, she explains herself and asks for a little grace. 

      As a teacher, talk about your own struggles, issues, illnesses, etc., to normalize that it’s okay to discuss things that society would rather see swept under the rug. There’s nothing wrong with saying, “Hey, Mrs. Ram Jam is struggling today due to a fibro flare, so please excuse her as she tortures your eardrums while she reads this aloud to you.”

      And answer their questions if they have any, and move on. Some of them will judge you, no matter what you say (or in my case how you say it), but you’d be surprised how forgiving students (and people in general) can be when you’re honest about your own limitations and invisible battles you might be fighting. 

      Posted in education, fibromyalgia, meniere's disease, teaching, ulcerative colitis, Uncategorized | 0 Comments | Tagged english teacher, fibromyalgia, invisible illness, reading aloud, teachers who curse
    • A Plea From a High-Risk Friend–Please Stay at Home

      Posted at 10:20 am by Jeddarae, on March 21, 2020

      Please stay at home.

      Your friends with underlying conditions, the immunosuppressed, and the elderly thank you for your efforts. 

      I am an immunosuppressed 37-year-old mother with underlying conditions–high-risk alert right here. Please stay home. I can’t help that my body attacks itself. It’s been this way since high school. Please help me out by staying home. 

      I know it’s not any fun, and you’re concerned about free will, your rights being limited, and a litany of other complaints—all of which might make you angry. But please set emotions aside for the time being and focus on facts and logic.

      As an English teacher, I teach my students to get their information from reliable, unbiased resources and to ground their arguments in facts, data, and logical reasoning. I also teach them to get information from experts. And while emotion is a powerful argumentative tool, it is, in fact, weak on its own. Even though emotions are real and important, they can mess up judgment. 

      Ignoring the CDC, WHO, Dr. Fauci, and governmental recommendations are illogical choices because they are the experts providing facts. 

      And here’s a fact, one that I’ve already stated. I am one of those people they consider high risk. Why?  

      I have three autoimmune diseases. THREE! 

      One:  Meniere’s disease. 

      Two:  Ulcerative colitis 

      Three: an undiagnosed disease my rheumatologist monitors me for

      Number two concerns me particularly because I was hospitalized for it in February. My colon hates me. This flare, unfortunately, coincides with a pandemic. Lucky me. 

      Because my colon is broken, I am on two immune-suppressing drugs. TWO! Prednisone, which I’m on for two more weeks, and tacrolimus–an organ transplant rejection medicine. Prednisone, an anti-inflammatory, is bad news according to the CDC. I get to take these drugs during a pandemic. Lucky me. 

      Also, those malaria drugs that doctors are testing as possible treatment for coronavirus–guess what? I’m allergic. Last year, I was prescribed hydroxychloroquine (Plaquenil) for autoimmune disease number three and broke out in hives six weeks into treatment. So again, lucky me. (I want to reiterate the term “possible treatment.”)

      Please stay at home because it shows empathy–which is ONE thing that we need more of in this world and another thing that I try to teach my students. This pandemic isn’t about you–it’s about all of us. 


       

      ONE final thought:

      Please stop sharing coronavirus information via memes and unverified Facebook posts. Consider the information’s source. I am readily reading my doctor friends’ Facebook posts and trust their expertise, but if I were to share that information to you, then you share it to Facebook Karen, then Facebook Karen shares it to Facebook Chad, then how does Facebook Chad know an actual doctor wrote that post? In this scenario, the information is accurate, but lots of posts shared this way are fake or spreading wrong information–with no way to verify the author’s authenticity. Before hitting the share button, confirm the post’s reliability. Try to share information from trusted sources instead of second hand. 

      Posted in meniere's disease, ulcerative colitis, Uncategorized, writing | 3 Comments | Tagged blogging, blogs, coronavirus, covid-19, highrisk, ibd, immunosuppressed, invisible illness, meniere's disease, pleasestayathome, politics, ulcerative colitis, washyourhands, writing
    • Is That My Invisible Illness, Am I Dying, or Is It Something Less Drastic Than Death but Still Needs To Be Treated?

      Posted at 6:35 pm by Jeddarae, on August 3, 2018

      It’s three days before the new school year starts, and I have E. coli. For real. The bad E. coli–where antibiotics are necessary.

      Want to know what floors me? I was oblivious to the severity of the matter until Wednesday evening when my doctor’s office called and informed me.

      You’re probably thinking to yourself, Mrs. Ram Jam, how in the French toast were you unaware when you experienced the classic symptoms: nausea, abdominal pain, fatigue, diarrhea, and malaise? Are you also one of those women who didn’t know she was pregnant until she sneezed and a baby came out?

      To answer the latter question–no. But to answer the former–these symptoms are a mere fraction of my normal. I just thought my IBS was flaring with the fire of a thousand suns.

      I’m going to be honest; 85 percent of the time, I’m in a shit ton of pain. It could be fibromyalgia, IBS, Raynaud’s, or Meniere’s Disease induced. I’m not looking for sympathy or to complain. It’s my truth, and as always, invisible illness remains invisible if its sufferers remain silent.

      Because I’m in pain most days, it’s pretty damn tricky to determine if new or increased intensity pain is due to chronic illness or if it has a different cause.

      Overwhelming fatigue? Is that my fibro flaring because of a midsummer cold front storming across Louisiana or a vitamin B12 deficiency, anemia, or strep throat? OR DO I HAVE THE PLAGUE???

      Radiating tender point hip pain? Is that fibro induced too or a vitamin D deficiency and a case of weak hips that needs three months of physical therapy? OR ARE MY BUTT CHEEKS GOING TO FALL OFF WHILE I SLUMBER???

      Bowel habit shifts and abdominal pain? Is my IBS pitching a hissy fit because it’s impossible to control while traveling or could it be small intestine bacterial overgrowth or E. coli? OR DO I NEED AN EMERGENCY COLOSTOMY???

      Most of the time my pain is due to chronic disease, but occasionally it’s something else. For example within the past six years, I’ve dealt with all of the diseases, physical therapy, and deficiencies listed above (excusing the all capped crazy thoughts of course). I initially chalked all these maladies up to my chronic illnesses.

      I’m lucky this bout of E. coli coincided with a regularly scheduled trip to the gastroenterologist; otherwise, it could have gotten awful before I convinced myself I needed a doctor.

      So how do I tell the difference?

      I can’t. When the pain gets different, unbearable, or alarming for too long, I schedule an appointment, describe my symptoms to my doctor, and try to convince myself I haven’t contracted botulism in the interim.

      And that’s part of what’s terrifying for invisible illness sufferers. We live in a habitual game show entitled: Is That My Invisible Illness, Am I Dying, or Is It Something Less Drastic Than Death but Still Needs To Be Treated?

      Unfortunately, I didn’t win a new car this episode, just E. coli. Which might be the worst thanks-for-playing parting gift ever. Who’s producing this game show anyway? You’re the suckiest. I hope the network drops you midseason and you get E. coli too.

      (P.S. How the hell did I get E. coli? *shudders violently* Okay, universe, you can keep that secret for eternity.)

       

      Posted in chronic pain, fibromyalgia, meniere's disease, Uncategorized, writing | 3 Comments | Tagged blogging, blogs, chronic illness, chronic pain, fibromyalgia, ibs, invisible illness, meniere's disease, writing
    • Chronic Illness: Playing Phone Tag with Doctors’ Offices

      Posted at 5:32 pm by Jeddarae, on June 8, 2018

      Because of chronic illnesses (fibromyalgia, Meniere’s disease, Raynaud’s, and IBS), I frequently contact my general practitioner, rheumatologist, ENT, and gastroenterologist.  Unfortunately, talking to someone alive the first go-round never happens.

      My doctors work for large hospital systems. For patients, no direct lines to a specific doctor’s office exist. I call the main hospital phone, listen to an automated message, press a bunch of numbers, get transferred to the doctor’s nurse’s line, and leave a message.  

      I completely sympathize. Medical professionals are overloaded just like teachers and can’t be constantly available therefore they use technology to filter and take messages.

      Also, I’m not calling to get free medical advice over the phone. I see my gastroenterologist every six weeks and my rheumatologist and ENT every six months. I schedule these appointments weeks or months in advance because it takes weeks or months to actually get an appointment. When my health suddenly shifts and I need specialist care, I call to make an appointment and often none are available. That’s when I resort to phone tag with doctors’ nurses because my doctors have expressly stated I can call and they will help via phone.    

      During the school year, it’s even harder to get in contact with doctors because I’m at work and in class before doctors’ offices open, I can’t call while I’m teaching, and my first break isn’t until 12:45 p.m. Then it normally takes an hour or two (or 24) for a return call.  (Again, I don’t expect an instantaneous return call. It’s like students expecting me to grade 100 five paragraph essays magically as soon as they get handed in. Not happening.)

      And if I miss the return call, then it’s necessary to repeat the aforementioned process because 98 percent of the time my call is returned when:

      • I’m using the bathroom, and my phone is on the kitchen counter, halfway across the house;
      • I’m driving through a school zone (No I don’t have bluetooth in my car, and yes it is still legal in Louisiana to be on a handheld device while driving–but not in school zones.);
      • I’m in class, and answering phones while teaching is severely frowned upon. #TeacherProblems;  
      • It’s my off period, and I could answer my phone, but I don’t get service in my classroom so by the time I sprint to an area with service, I’ve missed the call.  
      • I’m speaking with a different doctor’s nurse, and it’s rude to say, “Can you hold on for a sec?”;
      • Little Thing, watching Youtube Kids, has my phone and hangs up purposely instead of answering;
      • I’ve accidentally left my phone in the car for two minutes;  
      • I’ve forgotten to switch my phone off silent after the workday ends or after I wake up;

      OR

      • It’s 3:58 on a Friday afternoon, any bullet from above (except number three) conspires against me, and the doctor’s office closes at four–so I’m shit out of luck until Monday and the whole vicious cycle repeats.     

      I hate playing phone tag with the doctor’s office. The whole process is a colossal fiasco.  

      It’s 2018 people. I challenge the world to figure out a better way for doctors’ offices to communicate with patients.  A three or four phone call interaction per individual instance is comically ineffective.

      (I’ve even tried direct messaging doctors’ offices through apps like MyChart, but I’ve never gotten a written message back. The nurse calls in response to the emailed message. Go figure.)

      Surely the doctors’ nurses find themselves frustrated, too. Returning patient phone calls can’t be their only professional responsibility.

      How much time and money are wasted per salaried professional because of calling the same patient repeatedly over the same issue?

      Maybe it’s minimal, but the notion nags me–just like the fact that they’re never available when I am.    

      Posted in chronic pain, fibromyalgia, meniere's disease, Uncategorized, writing | 2 Comments | Tagged blogging, calling the doctor, chronic illness, chronic pain, fibromyalgia, meniere's disease, teacher problems, teaching, writing
    • A Poem: Invisible Illness Idioms

      Posted at 10:57 pm by Jeddarae, on December 8, 2017

      Because sometimes you need to vent when you have invisible pain.  Because sometimes haters are going to hate.  And because it remains invisible if you don’t talk about it.


      I’m a pain in the ass, full of shit, lend me your ear, and put a sock on it
      because of fibromyalgia, IBS, Meniere’s, and Raynaud’s chronic disease fits.

      I’m a pain in the ass,
      a daily debacle that will never pass.
      No matter how much I tweedle and wheedle,
      I smell something fishy and am on pins and needles.
      I carry the weight of the world on my shoulders
      and my body betrays me as it twitches and smolders.
      I’m a taste of my own medicine,
      but I can’t take any because it glues my innards together and turns my muscles to gelatin.
      I’m a pain in the ass
      that will never pass.

      And full of shit
      that’s hard to pass,
      leaving me feeling like a twit.
      I’ve got a gut feeling that sends me reeling.
      I can’t have my cake and eat it too
      without a flare up coming out of the blue.
      I don’t have a cast iron stomach.
      Most culinary delights leave my digestive track flummoxed.
      I feel like I’m eighty-six,
      and I’ve had to eighty-six Cajun concoctions in cast iron pots because of my tummy.
      Gone are all the foods that are satisfying and yummy,

      including salt,
      but that’s my inner ear’s fault.
      Go ahead, lend me your ear.
      I’ve got loads to tell you about my diseases that you don’t want to hear.
      Don’t get bent out of shape
      because I am bent out of shape.
      I’ll take your ears and attach them to my own with tape,
      so I can hear what you have to say dear.
      I’d love you to lend me your ear.  
      But I’m just a dizzy dame
      who is going slowly lame.

      I’d bend over backwards
      to be able to bend over forwards.

      And I’ll put a sock on it
      as well as gloves
      to get my hands and feet to stop it,
      my loves,
      from looking like they’re from a cadaver.

      But people still can’t figure out what is the matter.

      They say I’m full of shit and a pain in the ass
      and to stop being so crass.
      They don’t want to lend me their ears 
      because of their own piddling fears.
      They’d rather I’d put a sock on it.  
      It’s been listed first on my “how do I make my diseases easier for you” docket
      for years because you’d rather I’d wear your rose colored glasses.
      But now I’ll wear my rose colored glasses for fashion and call you a fascist.

      Because you think I’m a pain in the ass and full of shit.
      Because you won’t lend me your ear.
      And because I’m tired
      of putting a sock on it.

      Posted in chronic pain, fibromyalgia, meniere's disease, poetry, Uncategorized | 2 Comments | Tagged chronic pain, dizzy, fibromyalgia, ibs, idioms, invisible illness, meniere's disease, poems, poetry, raynauds
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